Little Miss Riley loves to sleep, and sleep, and sleep. Today we escorted her to her MRI. Because they need babies to hold still in order to get good imaging they need to sedate them. Well, not our Riley! She slept. The whole time. Just napped away. 45 minutes worth of imaging and she hardly budged. She likes her naps just like her Momma Dee!
We met with the surgeon again today. He's wonderful. We really like him. Bedside manner goes a long way with us. She is on the schedule for tomorrow after 1:00 pm. He had the MRI done today so they would have plenty of time to review the images before surgery. There will be a team in the surgery consisting of our Pediatric surgeon, plastic surgeon, and surgeon residents. The biggest risks, besides those associated with any surgery, are 1) There are two major nerves that may come into play. They'll have to be particularly careful to not impact those nerves. 2) They're not able to, or don't, get it all. This could mean potential recurrence which is not uncommon.
So, tomorrow morning we'll rest and spend lots of time with her. Then the surgery tomorrow afternoon which he feels may take around six hours. OMG! Six hours! What do you do for six hours while your little, two day old girl, is in surgery? I know it's not sleep!
Everyone, please keep the prayers and well wishes coming. Tomorrow's a big day. I'll do my best to post an update tomorrow night.
I leave you with a couple more snap shots of Riley. We're being very careful and not posting any pictures of the Hygroma. It's quite big and to us she's just beautiful, but to others it can be a little over whelming.
Riley with Momma Dee and Riley with God Mommy Angie (Yes, she's lucky enough to have TWO God Mommies!)
21 comments:
Dee she is just gorgeous. I mean absolutely precious.
I will be thinking of you like crazy. Please post or call with news on the surgery. Can't there be a call list for that ? :)
Like everything else this baby has overcome...she will with this surgery as well.
I CANNOT WAIT TO HOLD HER ! YUMMMM
Oh, and could Shelly's sister look any more like her. I thought it WAS Shelly :)
((((((((((((HUGE BIG GIGANTIC BEAR HUG FOR YOUR FAMILY)))))))))))
Not letting go until Riley's awake and in her mommies arms tomorrow.
She s so beautiful - gorgeous!!! We will be thinking of you tmr all day!!!
Please let us know how princess riley doing tmr...
:o)
congrats!!!
She is *so* beautiful!!! Congrats Mama's and happy baby mooning! I am thrilled for all 3 of you :D
GL tomorrow I will keep you three and the medical team/staff in my thoughts and prayers for an uncomplicated surgery and a speedy recovery!
we are thinking of you!!! we know surgery will go well and you'll have her home soon!
i think seeing pics of the hygroma would be interesting--it'll be something for her to see what she overcame as an itty bitty newborn. and you're right--she is absolutely adorable!!! we see some similarities with big sis. :) can't wait for more updates and to eventually meet miss riley in person!!
Just delurking to let you know I'll be thinking of you two and your princess tomorrow. It sounds as if you have a great medical team on board and that you both are as prepared for this as is humanly possible. I know you probably don't have a choice to be any other way! Still, the stress must be enormous but the grace you have exuded is obvious. I am wishing everyone a speedy recovery.
She is amazing and beautiful! Congratulations.
I'll be holding all three of you in my heart tomorrow. Hugs.
Riley is just gorgeous! Beautiful, perfect little features!I will have you all in my thoughts tomorrow as the doctors take care of your little one.
Just stopping through (found you via Trista writing on LesbianFamily.org) to wish you both congratulations--your daughter is gorgeous.
We'll keep you in our thoughts and wish a speedy and successful surgery for Riley.
And congrats again!
We will be thinking of little Riley, and you and Shelly tomorrow! She is precious - thanks for sharing pictures!
Wishing you all the best, and hoping the surgery goes by quickly.
You have a beautiful and strong baby, she must of got that from her mommies!
congrats girls.
we are praying for you and thinking of you.
You have my prayers and thought for the whole day!
Good karma coming you way!!
She's beautiful and I'll be holding you all in the light this afternoon.
We sure wish we could be sitting there with you keeping you company.
Were sending warm hugs and positive thoughts and prayers.
Lots of love, holly, lois and andrew
Little miss Riley Jo should be starting her surgery soon so I just wanted to send you my love and let you know I am praying that everything goes smooth this afternoon. I love you guys!! Big hugs to the three of you.
i'LL BE PRAYING FOR YOU ITS HARD
TO HEAR ABOUT ANY LITTLE ONE GOING THROUGH SOMETHING LIKE THIS AND WHEN ITS YOUR OWN WELL, I COULDNT IMAGINE, I JUST KNOW ITS GONNA GO WITHOUT A HITCH YOU SEEM LIKE YOU ARE THE PERFECT MOTHERS FOR THIS BEAUTIFUL BABY!!!SO SWEET!!
Congratulations!!!!The pictures bring tears to my eyes!!
You have our most heartfelt prayers for the coming surgery!
Hugs and love,
jojo
another delurker here! have been reading your blog for 6 or so months now. so glad riley arrived safely and our family wish yours the best of luck for the surgery. may the 6 hours fly by and may your precious little girl be as well as well can be.
Working for the University Hospital and closely with Primary Children's, I have so much respect for their talents. You are in very good hands!! That said, our prayers will not hurt so you have them!!
Your daughter is so beautiful and adorable. We are praying for Riley and your family.
I am 19 weeks pregnant with my first child and last week at my routine ultrasound they found a cystic hygroma that measured 3 cm in diameter & is limited to the right side of the neck. We are just trying to learn more about this condition to know what we will be facing. The doctors are telling us that if it does not grow much larger it will be able to be removed after birth. Any advice or information would be greatly appreciated. This condition is so rare that you are the only ones we've seen with the possibility of contacting. leeanndeas@yahoo.com Thank you very much. We will have Riley in our thoughts and prayers.
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