On Sunday we hit the 33 week mark! Yeah! We're so close to the next big milestone of 34 weeks!
I've posted a beautiful picture of Shelly at 33 weeks. Don't you love the beautiful spring flowers! We took this on Easter Sunday. What a beautiful day! I would also like to take credit for the beautiful yard but it's actually our neighbors across the street. Our flowers haven't come in yet. :(
Today was D-Day (Doctor Day). We met with the Perinatologist, Genetic Counselor, NICU Head, Insurance Case Worker, and had a non-stress test. Sounds like a lot but it was a good day! Today was the most positive appointment we've had since the dreaded 12/29 appointment.
The Perinatologist feels like things are progressing well. There is no Hydrops and there is no blood feeding the Hygroma. It's just fluid. The Hygroma did not get bigger from three weeks ago and Riley is continuing to grow like a weed and is still measuring a week ahead. They estimated her current weight at just over 5 lbs! At this rate, if she went term, and continued to gain a 1/2 lb. a week she'd be close to 9 lbs!
The Genetic Counselor checks in with us when we meet with the Perinatologist to just help answer questions and take care of any follow up appointments. Again, just as a reminder for you all, she has no Chromosomal abnormalities. There are still a couple of Syndromes out there that aren't genetic we'll need to check for but our hope is that it's just a Cystic Hygroma.
Our insurance company has assigned a case worker to follow us. She is wonderful! She comes to see us every week at our appointment. And, she takes care of everything! I don't have to worry about any insurance approvals. She's got it covered! We love her!
The NICU Doctor said that he doesn't expect any complications during Riley's transition from Prenatal to Postnatal. Because the Hygroma is located on the back of her neck he doesn't believe it will cause any issues with her airway. He did recommend that we deliver at the University of Utah which is walking distance from Primary Children's Medical Center. That way, once Riley's born, she can be cared for at Primary's. Plus, we don't want Shelly to deliver at one hospital and then have Riley moved to another hospital several miles away.
Our wonderful insurance case worker has already arranged for us to meet with the NeoNatal unit and Pediatric Surgeons at Primary's. Our appointment is a week from today. She's also arranged for our tour of the U of U Labor and Delivery. And she gave us the number to call so that while we're there the Car Seat people at Primary's can install Riley's car seat. I'm telling you she is on top of it!
On Tuesday, before our appointment at Primary's, we'll go for a Non-stress test. We'll continue with weekly Non-stress Tests and another full Ultrasound scheduled for three weeks, May 1st.
Thursday we have an OB appointment to check on Shelly. We'll also hopefully talk about potential planned C-section days so that they can get us on the OR schedule. Right now, our insurance case worker, submitted the temporary order for May 17th. OMG! May 17th! We're getting soooo close!
So, today was a good day. We're now even thinking of having our family baby shower before Riley's born because we don't know if she'll need surgery right away. I think we'll still wait and have our friend baby shower after she's born.
More to come Thursday after our OB appointment!
14 comments:
ARE YOU KIDDING ME !! That is SUCH good news. All of it. I'm so sorry that you had to be so scared for so long. I can't wait to meet little Riley Jean. :) That's what I'm calling her, ok. ha ha
By the by....that's funny that you took a picture across the street. I don't think you should have spilled the beans about it. Your yard is GORGEOUS, so I'm sure when they start blooming the neighbors will be at your house with cameras in hand.
YEAHHH Congratulations !
P.S. Please stop this blog on blog off crap. You haven't HAD Riley yet...which is when you are free to drop off the planet for days at a time. You don't have to read and comment on EVERYBODY'S blogs...just type a little Hey, a little Ho ! Just so we know you are happy and safe !
P.P.S. You can make it up, by showing pictures of the babies room :)
The picture is absolutely beautiful!
THE NEWS ABOUT RILEY IS WONDERFUL!
You are almost there and this little girl has been making such incredible strides through this whole thing! Just look at how optimistic all these doctors are who weren't being so uplifting in the beginning of this!
It is getting close! This is so exciting!
Wow! Another milestone. Another week. 33 weeks!
The roller coaster that you have been through...and now things look so good. The fact that there is no hydrops and there is no blood feeding the hygroma is awesome...I don't know as much as you do about this, but what are the chances that SUDDENLY blood starts feeding it? That can't happen, can it?
It's awful that you have to deal with this at all....but I am convinced this story is going to be a rocky, scary road with a happy ending!
keep us posted!
Oh, and great picture!
We are so thrilled to hear the good news that you both have shared with all of us....all of the goosebumps coming up and you both really inspired us with what you both had to go through with Shelly's pregnancy and keeping eye on RIley! This process can be just so stressful with worrisome but you both fought so hard to stay strong!! You both are going to be outstanding mommies who will give Riley so much love and something to be so thankful to have!! :)
Congratulations!! We cannot wait!! H is so happy that Riley's gonna be born in the month of May--her bday is May 28 and shes going to 33!
Fantastic news! We're so happy for you.
Love the picture!
Congrats on the GREAT news!
Geez, There's so many comments!! Do you really read them all Dee? =) Anyway, glad to hear that things are going good. We're all happy for you three. Take care and keep us updated. Amy
omg that is SUCH wonderful news. praise god!
the other day i was remarking to my brother how odd it is that i feel so close to all my internet friends, including you and shelly. hell, mikaela and i even include you, shelly and little riley in our nightly prayers. i am so excited to share in your journey and i just CANNOT wait for the moment you and shelly hold your precious girl in your arms. god i am telling you there is no feeling in the world like it.
oh and another lovely picture of shelly. love the purple phlox in the background!
Just wanted to say congratulations on the good news from the Dr. Your case worker does sound awesome! We will keep you in our thoughts and prayers.
That is great news! I think that is a good idea to deliver at the U. I think it is good to have your baby shower as well. You need stuff! Riley will be fine!
I knew it! I just knew Riley would be doing incredibly well. I'm so over the top thrilled for you all!!!!! :) :) :)
Keep the reports coming - I stop by several times a day to make sure I don't miss a single thing.
:)
Great news!
Kristin delivered our baby at the U and though it's an excellent hospital and you'll get excellent medical care there (and Primary's is great), and I don't want to scare you, I do want you to know that we did have a rough time there during the nights, including the nurse our first night who seemed to have a big problem with us and didn't check on us (Kristin had just had a c-section) and didn't want to help Kristin get up and clean off or help me change her blood-soaked sheets.
The L&D nurses and staff were amazing. And when you get onto the maternity ward see if Patience is still working there and if can have her as she was absolutely wonderful.
I hope this was helpful, and I sincerely apologize if it wasn't.
What great news!!! So HAPPY that things are going so well. :)
And wow, that is a beautiful photo! I can't believe you have such nice flowers already, even if they aren't in your yard. We have some green bits sticking out of the ground, promising to be tulips and Tiger Lilies. But that's about it.
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